The cause of PNES is not fully understood. But it is estimated that up to 25 percent of patients with epilepsy have been diagnosed incorrectly and, in fact, have PNES.
To determine what type of seizure response dogs are truly sensing, researchers from Johns Hopkins University School of Medicine looked at seven people with seizure response dogs. Since only an epileptic seizure would cause a change in electrical activity in the brain, the researchers used electroencephalograms (EEG) to monitor for this unusual occurrence.
Ultimately, five of the study participants were diagnosed with PNES, not epilepsy.
“This is important because the treatment is very different for a person with epilepsy and one with psychological seizures, which stem from emotional difficulties,” said Dr. Gregory Krauss, study author.
Moreover, if people with psychological seizures use drugs for epilepsy, they may be putting themselves at risk.
“Epilepsy drugs are not effective for psychological seizures, and they often have side effects,” said Krauss. “With proper treatment and counseling, psychological seizures can often be eliminated.”
Krauss notes that some people with epilepsy may still benefit from service dogs, and adds that companion or service dogs may be helpful as emotional support for people with PNES, but they should not take the place of treatment.
“Seizure response dogs can help people during seizures and stay by them when they are unconscious and provide companionship that aids them in dealing with a chronic disorder,” said Krauss. “People with nonepileptic seizures require a psychiatric evaluation and therapy.”
“This study demonstrates the importance of establishing an accurate diagnosis of epilepsy before obtaining a seizure response dog,” he adds.